Friday, August 19, 2011

Answered Prayers - It's long, but read it all..it's worth it!

This week has thrown me for an emotional loop. My head it spinning with possibilities and questions, I don't even know where to begin to explain it all. 

On my way to the doctor Tuesday morning, God and I had it out. I was exhausted, frustrated, and scared of what I was about to learn at my appointment. I cried my eyes out as  I pleaded for answers, for peace, for a baby. I prayed that He would be more clear in His plan, my heart needed a break. I prayed that either this cycle be successful, or we be approved for a medical loan for $16,000 to try two cycles of IVM with the doctor we visited two weeks ago. I am willing to give up if that's what's necessary, but I don't want to do that unless I KNOW we have to. I begged Him for answers and then I cried, and cried, and cried some more...probably not the safest thing to do while driving...but hey.

So I finally got to the office (reapplied my make-up in the parking lot) to check my estrogen and follicle growth and they found that we missed my LH surge and I was already ovulating. They planned to do an IUI on Wednesday, but after another assessment, they determined that it was too late. So yet another failed cycle for August. We were told to continue with a natural cycle and they will still do a pregnancy test on the 30th, though it's not likely to be positive.

I was devastated. I couldn't believe we had lost our last chance. Ok God, so that was a quick answer...now on to the loan. Right? 

Not today....God has other plans for us.

A few hours after my appointment I received a phone call from a nurse wanting to schedule an appointment with our doctor for a consultation. As we started looking at dates, I asked what we were going to talk about and she mentioned that when we first started looking at options, we had said we were potentially willing to do IVF cycles. The doctor wanted to know if that was still the case. Now, theoretically, it is. However an IVF cycle is about $20,000-25,000 in their office when all is said and done...and we were struggling to come up with $8,000 for the IVM. I told her that it just wasn't in the cards right now, but in the future...yes, we probably would go down that road. 

I can almost audibly hear her smile when I finally stopped talking. She simply said, "Well that is why I am calling." 
Apparently our doctor is working on a new study to decrease the occurrence of multiples in IVF pregnancies. Right now, IVF is done by taking several viable eggs, fertilizing them, and selecting the two best "looking" embryos to place back into the uterus. In his study, for the last few years, our doctor has been working on genetically testing the embryos to find the healthiest one...meaning that it is the most likely to turn into a baby healthy enough to be carried to term. 

In his study there will be two groups, one that receives the current standard of care (2 "good-looking" embryos, unstudied) and the other that receives 1 genetically tested embryo. Right now, the standard of care yields an approximate 54% success rate, while the new treatment plans has a success rate of 72% thus far. (Both of these rates kick the pants off of the 20-30% we've been working with!!) The potential mother will not know what group she is in until the day of the transfer. 

She said the doctor is very interested in me and my history, so even though I didn't meet all the minimum requirements (my natural cycle is too long), he pushed me through. Why? Well, I believe God led him to...though I am sure he wouldn't admit to that. :) If I participate in this study, we will receive one fresh cycle and one frozen embryo cycle...for $1,600. Yes, that's right...potentially a $48,000 gift from God...and our doctor. Can you say answered prayer?! 

The doctor said that he will cover all the costs of my IVF including medication...all we would need to pay for is the anesthesia ($1,000), the cost of freezing the embryos ($600), a pregnancy monitoring cycle (approx. $3,000 - 4,000), and co-pays each visit. 

So that means we're looking at a minimum of about $5,000 for a $25,000 procedure.

Sounds amazing right? 

IT. GETS. BETTER.

As per the doctor's suggestion, I contacted our insurance company to see what percentage of a pregnancy cycle they will cover if we proceed with an IVF cycle...100%!! That's right...we're down to 2,000 for two entire cycles of IVF. 

But wait...there's more! 

My goodness, I can hardly contain myself as I write this. God is so good!!

We then learned that Peter's company has a pool of money to help cover medical costs since their insurance is not that great...we received $5,000. 

We can proceed with a treatment that it would take years for us to afford...and it will be absolutely FREE.

Now obviously this is not a guarantee by any means...but it's a chance we wouldn't have if it wasn't for the Grace and Mercy of God and the curiosity and compassion of our physician. I'll take it. 




"I am speechless. I'm astonished and amazed!
I am silenced by your wondrous grace! 
You have shown us a love that leaves us, speechless."

- Steven Curtis Chapman                

Monday, August 15, 2011



"Because He lives I can face tomorrow.
Because He lives, all fear is gone.
Because I know He holds the future,
and life is worth the living just because He lives."
                                                                            - Bill Gaither

Sunday, August 14, 2011

Me me me...I want healing!

I had yet another terrible appointment. The medication just isn't working. The freaking $2,500 medicine that we prayed and prayed for isn't doing a thing. I cannot express how angry I am. I am frustrated that our "last chance" isn't working at all. I'm devastated that this is truly our last try for probably a year or until we can save enough money for a more aggressive treatment. And I'm just done with it all. I hit a breaking point, ran out to my car and sobbed uncontrollably.

While I thoroughly believe that God can use anything and anyone to speak to us, I do not often realize that he is doing it IN the moment. I think He took a moment to quiet my aching heart to share His peace with me. When I finally couldn't stand the sight of my red eyes in the rear view mirror for another minute, I turned on the radio and this is what I heard:

"Be still, there is a healer
His love is deeper than the sea
His mercy, it is unfailing
His arms are a fortress for the weak"


I'd love to say that this simple phrase changed my life. That I'm hopeful and happy, ready to move on with my life knowing that God will provide...but that's just not the case. I'm not sure how to explain it, but I feel comforted knowing that I serve a God of healing...that He could, at any moment, create a miracle in our story...but I also feel frustrated that it's not now, that we are working so hard, seemingly in vein. But I have faith that one day God's plan for us will be revealed. Until then, I am trying to be patient, praying for my miracle each day...each moment of every day. He is faithful, and I must faithfully wait.

Let faith arise
I lift my hands to believe again
You are my refuge, You are my strength
As I pour out my heart, these things I remember
You are faithful, God, forever

      -Chris Tomlin                                                    

Saturday, August 13, 2011

R-E-S-P-E-C-T

We are mid cycle right now, and the almost daily 6am doctor appointments are beginning to suck my will to live. Pete's been giving me my shots for about a week, something he really hates to do. I can see the pain in his eyes with each shot, but he does a great job. It doesn't hurt that badly, only when the medicine goes in..something like a tetanus shot in the stomach. The only thing that hurts is when the follicles begin to grow. Each morning I get blood work done, as well as an ultrasound to monitor my progress and to ensure that my ovaries are not in jeopardy. So far, my follices are not maturing at all, but my cysts are growing rapidly.

Yesterday when I had my ultrasound the doctor was so insensitive, he hardly made it out of the room before I cried. He started the ultrasound, spouted all his assessments to the nurse, and walked out. Now, since we've been doing this for almost a year now, I can pretty much do my own ultrasounds and it was clear that the medicine is not working...at least not the way it should be. After a week of my shots, there is only one 12mm follicle to be found. I know it's not his job to coddle me, but even speaking directly to me at least once would have made it a nicer interaction! He came in, did his job, and left. I don't know, maybe I'm wrong, but I feel like that's not the way it should be. I really don't like this office, but what choice do I have at this point?

When we went to the other doctor last week, they were so nice. They chatted with us, got to know us as a couple, and even took our picture so they could put a face to the name when we spoke on the phone in the future. It was a small office and you really just felt at home. The office we are working with now is cold and I always feel like cattle being pushed from one room to another moments after the last woman has left. It's not necessarily bad, but I just feel like this is a very personal, uncomfortable, and sensitive topic...a little personal contact would go a long way. In the 10 months we've been working with them, I've never had the same doctor more than 2 days in a row. They are different every morning. How do you build trust in someone that you never see? It's definitely not ideal, but again, they seem to know what they are doing..and it's covered by our insurance for the most part. I shouldn't complain. We're lucky to have them...I have to remind myself of that often.

Tuesday, August 9, 2011

Waiting for Hope

"There are times when everything looks very dark to me - so dark that I have to wait before I have hope. Waiting with hope is very difficult, but true patience is expressed when we must even wait for hope. When we see no hint of success yet refuse to despair, when we see nothing but the darkness of night through out window yet keep the shutters open because stars may appear in the sky, and when we have an empty place in our heart yet will not allow it to be filled with anything less than God's best - that is the greatest kind of patience in the universe. It is the story of Job in the midst of the storm, Abraham on the road to Moriah, Moses in the desert of Midian, and the Son of Man in the Garden of Gethsemane. And there is no patience as strong as that which endures because we see "him who is invisible" (Heb. 11:27). It is the kind of patience that waits for hope.

Dear Lord, You have made waiting beautiful and patience divine. You have taught us that Your will should be accepted, simply because it is Your will. You have revealed to us that a person may see nothing but sorrow in his cup yet still be willing to drink it because of a conviction that Your eyes see further than his own.

Father, give me Your divine power - the power of Gethsemane. Give me the strength to wait for hope - to look through the window when there are no stars. Even when my joy is gone, give me the strength to stand victoriously in the darkest night and say, "To my heavenly Father, the sun still shines."

I will have reached the point of greatest strength once I have learned to wait for hope. 

-George Matheson

Monday, August 8, 2011

I Google. Do you Google?

As you can imagine, Google has become my new best friend.

And my worst enemy.

I spend my evenings Googling everything from treatment options and success stories to experimental procedures and side effects. Sometimes I go to be energized, other times depressed and defeated. More often than not, Google is bad news bears.

Well, Peter and I have been talking about getting a second opinion and finally found a doctor that looked promising. This guy has one of the only practices in the tri-state area that offers a procedure called In Vitro Maturation, which is similar to, but not as aggressive as IVF (but much less painful!). Basically the doctor takes out a bunch of my eggs, matures and fertilizes them in a lab, and places them in my uterus. It's much more effective than what we are doing and doesn't require medications to stimulate my follicle production, which greatly decreases the risk of complications. It is also less than half the cost of IVF, coming in at around $8,000 a cycle, where as when all is said and done, IVF is around $20,000.

Sounds awesome doesn't it? There are specifications you have to meet in order to be a candidate...we are a perfect match. Only one problem, the doctor requires payment in full at the time of the procedure...which would be 2 weeks from now. I wish I had that to give, but that's just not in the cards. We drove the hour and a half home in a cloud of sadness and silence. I was heartbroken. I had such high hopes for this doctor. Everyone is the office was so nice, we were like guests rather than cattle. It was refreshing. One thing we did learn was that the medication I am currently taking, you know the $2,500 shots I have to put into my stomach every night, may be creating a hostile environment in my ovaries and killing my eggs. Swell.

Basically that leaves us with two choices; 1) Take a year off and save up for a few cycles or 2) continue with the medication we already have and try for another IUI

Honestly, we don't know what the answer is, but Follistim is the only thing we have to hold on to and it's already paid for in full...so we're going for it. At least once more.

I started my injections on Thursday, 50iu/day for 4 days. I went in for an ultrasound this morning and my cysts are almost gone and I have one 13mm follicle beginning to grow. I have two more days before my next exam and we'll see how many have grown.